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Child with Special Needs Can Exhaust Family's Finances


A child with special need means not only emotional but also financial pain for a family.
Even under the best conditions balancing a household budget can be tough and painful. Add to the mix the needs of a child with autism and a family's finances can quickly flounder. This is a story of parents driven by devotion to the brink of bankruptcy

 

http://www.upi. com/ConsumerHeal thDaily/view. php?StoryID= 20061215- 115917-5733r

Ped Med: Brain size may point to autism


SAN FRANCISCO , Dec. 21 (UPI) -- To some autism researchers, head size matters.

Large brain volumes and craniums appear to be a family trait in about one of every five children with autism, one team reported in a study published in the Archives of General Psychiatry.

In another investigation, scientists who measured the head circumference of children at birth and then two or three years later found as newborns, nearly all of the youngsters later diagnosed with autism had abnormally small heads that, in 90 percent of the cases, swelled to unusual proportions by toddlerhood.

"The clinical onset of autism appears to be preceded by two phases of brain growth abnormality: a reduced head size at birth, and a sudden and excessive increase in head size between 1 to 2 months and 6 to 14 months," the researchers noted.

The accelerated growth crams into a short time span an inordinately intricate and immensely important process of nerve-cell connections that typically takes many years.

In a healthy child, during this "period of plasticity," the brain gradually adjusts, adapts, assimilates and acclimates to its environment, emerging as the body's most exquisitely complex organ.

In autism, this stage is fast-forwarded, spinning what should be a meticulously ordered progression in brain development into a frenzied jumble of "neural noise," researchers said.

Overwhelmed by the whirlwind of rapidly changing aberrant nerve pair-ups, the infant loses the ability to make sense of his world and withdraws, the scientists theorized.

By the time the tot enters preschool age, the window of opportunity for making the right connections with the external world has passed, leaving the child bewildered by his seemingly senseless surroundings, scientists said.

"Abnormally accelerated rate of growth may serve as an early warning signal of risk for autism," the study authors concluded.

If corroborated, the findings of head size as an indicator of autism could lead to very early diagnosis and effective biological treatment, or even prevention, of the disorder in certain cases, the researchers said.

Support for the findings has come from several other investigative teams.

One group observed that, in general, children with autism show a brain enlargement by age 2.

In the study, the researchers from the University of North Carolina at Chapel Hill and Duke University medical schools compared magnetic resonance imaging scans of the brain anatomy of 51 autistic toddlers ages 18 months to 35 months to those of 25 tykes without the disorder.

They also took a look at head measurements of 113 youngsters with autism and 189 without taken during the first three years of life.

Normal at birth, the head sizes of the children later diagnosed with autism began to balloon at around 12 months.

The scientists left open the question of why the roughly 5 percent greater-than- typical brain spread occurs and exactly what it means.

However, they noted, indirect evidence suggests the growth spurt likely begins during the later months of a baby's first year of life, meaning it might be used as an early indicator of the disorder.

(Note: In this multi-part installment, based on dozens of reports, conferences and interviews, Ped Med is keeping an eye on autism, taking a backward glance at its history and surrounding controversies, facing facts revealed by research and looking forward to treatment enhancements and expansions. Wasowicz is the author of the forthcoming book, "Suffer the Child: How the Healthcare System Is Failing Our Future," to be published by Capital Books.)

Next: The case of the cracked mirror neurons

--

UPI Consumer Health welcomes comments on this column. E-mail: lwasowicz@upi. com

 

Public release date: 20-Dec-2006

Contact: Dottie Jeffries
djeffries@apsa. org
212-752-0450
American Psychoanalytic Association

Neurobiological insights for psychoanalysts working with autistic children

Discussion group at American Psychoanalytic Association Winter Meeting

New York , NY – Psychoanalysts seeking a greater understanding of autism will participate in the "Psychoanalytic Approaches to Working with Children with Autistic Spectrum Disorder: Insights from Neurobiology" discussion group at the American Psychoanalytic Association' s 2007 Winter Meeting. The discussion group will be held on Wednesday, January 17th, from 7:30-10 p.m. at the Waldorf-Astoria Hotel. Members of the media are invited to attend.

 

According to a recent Newsweek magazine article, autistic spectrum disorder is estimated to affect as many as 500,000 Americans under the age of 21. Martha Herbert, M.D., Ph.D., instructor of neurology at Harvard Medical School , will address the analytic audience regarding the changes that occur to the brain when a patient is psychoanalytically treated. Her studies show that the autistic brain can evolve; that is, neuro-pathways can begin to regenerate between the cognitive and emotional sections of the brain.

 

The discussion group will be co-chaired by William M. Singletary, M.D., a faculty member of the Psychoanalytic Center of Philadelphia' s Child Psychoanalytic Psychotherapy Program, and Susan P. Sherkow, M.D., a supervising analyst of both the Child and Adolescent Divisions of the New York Psychoanalytic Institute and of the Berkshire Institute and Society for Psychoanalysis.

 

For more information regarding the "Psychoanalytic Approaches to Working with Children with Autistic Spectrum Disorder: Insights from Neurobiology" discussion group or other scientific sessions at the American Psychoanalytic Association' s Winter Meeting, please call 212-752-0450, ext. 21, or email deder@apsa.org. Members of the media should direct their inquiries to Dottie Jeffries at 212-752-0450, ext. 29, or djeffries@apsa. org.

###

Founded in 1911, APsaA is a professional organization of psychoanalysts throughout the United States . The Association is composed of Affiliate Societies and Training Institutes in many cities and has approximately 3,500 individual members. APsaA is a Regional Association of the International Psychoanalytic Association.

 
 
How Autism Feels     
Kate Goldfield 
 When I was a freshman in college, someone asked a friend of mine if I was autistic. Having almost no knowledge about what autism was other than a dim memory of a "Rain Man"-like character rocking in the corner and nonverbal, I was appalled. How could anyone possibly think I was like that? 
Two years later, I rediscovered the subject of autism after seeing a Lifetime movie about it. I was intrigued by some of the concepts in it and began reading everything I could find about autism, purely out of intellectual interest. 
I awakened to the notion that a lot of what I was reading sounded like me. I learned that autism is actually a spectrum disorder, which means that there are people who are affected by it on different levels. I discovered something called Asperger's Syndrome, which is high-functioning autism and markedly different in its presentation from what we could call classic autism. 
People with Asperger's Syndrome, or AS, I learned, have trouble reading social cues and understanding nonverbal language. They have trouble knowing what to say in conversations, when to start speaking and when to stop speaking. They fail to notice subtle conversational cues like change in tone of voice or body posture. In fact, they have trouble with social language in general. 
They are often highly intelligent, especially with special interests that they pursue, but have trouble conversing. Because of this, they have trouble making friends and many will go through all of high school and college without having ever really made a good friend. 
Sensory issues are very prevalent in people with AS. They can hear the sound of a person tapping their pencil from across the room. The smell of cigarette smoke or cleaning agents will drive them crazy. Lights are either too bright or too dim and they often have a difficult time finding clothes that they can bear wearing because of the way they feel on their skin. Often, they will have sensory overloads and need some time out from an activity to process all that is happening to them. 
For this reason, eye contact can hurt. Social interactions for someone with AS can be like trying to put together a 500-piece puzzle before the time is up. We even speak differently; our conversational manner tends to be quite genuine. We say what we're thinking. 
It is this genuineness, though, that endears us to many people. We don't play guessing games with people; we say what we mean. As employees and friends, we are loyal. We have the ability to focus completely on tasks of interest for hours at a time and also to remember huge amounts of facts related to our interests quite easily. 
When I was diagnosed with AS last summer, it came as an enormous relief. I finally knew why I had always hovered on the outside of social life, always wanting to join in but somehow never being able to figure out quite how. I could find other people who understood me and were like me. 
Unfortunately, many people are not as fortunate as I was to gain this understanding about myself. There is comparatively little information available about AS. It was put into the Diagnostic and Statistical Manual of Disorders (the official handbook of what is and what is not a psychological disorder) in 1994. There are many people out there who wonder why they are different, who are desperate to find the missing piece, but have never heard of AS. 
I explain all of this just to give the average person an idea of what it is like to live on the autistic spectrum. I feel that it is only by learning about others' struggles and truly trying to understand them that we can build a world that is safe for everyone - a world where we can grow and improve because we are taking advantage of everyone's strengths, not just the strengths of a selective few. That's the kind of world I want to live in. It's the kind of world we all want to live in.
Kate Goldfield is a senior at Goucher College in Towson. She wrote this for the Baltimore Sun. 
 To comment on this story, or to request a correction click here to send a message to Karen Hunter, The Courant's reader representative. Click here to read Karen's daily Weblog. 
 
Serving For Autism Offers Life Lessons


It's 8:30 a.m. on a Saturday morning at the National Tennis Center in Flushing Meadows and a trio of enthusiastic tennis players are eagerly driving themselves up the wall. It's not just any wall, but then these aren't just any tennis players.

 


The wall is an electronic blue backboard outside of the U.S. Open's Grand Stand court that erupts in sound and light when the shots strike targets. The students are autistic. Their faces light up with excitement when they hit the mark and make the wall whir like a pinball machine belching bonus points.

 

For two weeks each summer, the best players in the world convene on these courts to contest the U.S. Open championship. For nine months that span the school year, the students — including 15-year-old Andrew Hornstein, 10-year-old Daniel Thomaschek and 7-year-old Patrick Flanagan — and their parents meet every Saturday morning to participate in the Serving For Autism program.

On the surface, veteran USTA National Tennis Center instructor Mike Littman is teaching tennis lessons, but watching him interact with the kids it's clear they are learning life lessons.

"Let's face it, none of these kids are on the fast track to the U.S. Open," says Joel Hornstein, whose son Andrew has participated in the program since it began. "But I really believe this program has helped the kids in so many valuable ways. It helps the children not only with motor skills, but with their self-esteem, learning to focus, learning to pay attention, learning patience, learning to wait your turn, learning to understand directions, learning to improve their language skills and learning to interact with other children. We're not training for the U.S. Open here, but this program and Mike's teaching — he's so patient and understanding of the kids — is hopefully helping our kids learn valuable skills that they can apply for the rest of their lives and that's something very important this program gives to our kids."

Autism is a brain disorder that afflicts about one in every 500 hundred Americans. The National Institute of Mental Health reports autism "often results in a lifetime of impaired thinking, feeling and social functioning — our most uniquely human attributes. Autism typically affects a person's ability to communicate, form relationships with others, and respond appropriately to the external world. The disorder becomes apparent in children generally by the age of 3."

Degrees of autism span the spectrum of children who can function at a relatively high level, attend school and carry on a conversation to the more severe autistic cases of children who may not speak at all, seldom make eye contact with others or show signs of any social interaction.

The life of a severely-afflicted autistic child can be a solitary one, which is one reason why the parents of participating students believe sports can be so vital to improving their child's quality of life — it connects the kids with a common purpose.

Serving for Autism — which is also conducted in Brooklyn — was created four years ago by Andrew Baumann, president of New York Families for Autistic Children. Founded in 1998, NYFAC.org provides programs for autistic children and their families to participate in recreational activities. Baumann, whose 11-year-old son Anthony is autistic, joined forces with New York State assemblyman Mark Weprin to help launch the program. The USTA donated one hour of court time each week at the National Tennis Center, USTA-Eastern liaison Lara Schneider helped procure funding for the program and Littman, who spent 32 years working for the New York City Board of Education as a teacher and dean of students on the Lower East Side and has extensive experience teaching developmentally disabled children, volunteered to teach tennis to the kids at a reduced rate.

"You can tell from watching them play, the kids love tennis," Baumann said. "They absolutely love it. At NYFAC, we will deal with any child from very severely affected child to a high functioning child. We've had children of all different functioning skills participate in the program. They not only play together, but have been able to learn discipline, turn taking and a limited sense of camaraderie. Honestly, friendships are hard to make for these children, but they do often display a fondness for one another. It's a kind of a bond, on a different level, that you and I might not really understand."

Initially, the program founders were concerned that tennis could become a dangerous contact sport as autistic children swinging racquets around for the first time could hurt themselves or others, but those fears have been unfounded.

"Children with more severe cases of autism can be aggressive and cause self injuries," Baumann says. "So when we started this program, I was worried about kids hitting themselves with the racquet, hurting themselves or each other, but fortunately we've never ever had that. When we started the program, we used bigger balls with six-foot streamers to help the kids keep their focus and attention and then we reduced the size of the balls little by little until we had them hitting with a softball-sized tennis ball and now as you see they hit with the same ball you and I hit."

They're taught the same skills as any other kids who take lessons at the National Tennis Center. Littman starts each session at the net rallying with the players from a few feet away and gradually moves further back until he's feeding them balls from behind the service line. The most popular part of their weekly lesson is when Littman takes the tubes used to collect the balls and sets them up near the service line and the kids fire away in a target practice drill that brings smiles to the faces of both players and parents.

"I teach all types of students — from beginners to advanced — and these children are doing just what any other kids can do on the tennis court," Littman says. "And that's the main thing we're trying to accomplish — to mainstream them and give them the opportunity to experience the same activities other kids do. As you can see, they're doing very nicely."

On this day, most shots they strike hit the center of the strings. The children line up behind each other and take turns hitting the balls Littman feeds them. On the occasion when their eyes wander to the other courts or to their parents who stand courtside to watch the lesson, Littman stops, holds a tennis ball up to eye level and asks them to focus on the ball before he hits another shot.

"Autistic children have a very difficult time focusing," Littman says. "Focus is one of the primary goals because they do have focusing problems in life and concentrating on the ball, in my opinion, does help them. For instance, if there is something going on on another court and they see it or hear it, they can be distracted. Even in making eye contact, you'll notice they'll often look right through you or off to the side of you, but they won't necessarily look directly into your eyes. Playing tennis actually helps because they're forced to focus on the ball coming at them in order to hit it."

While they do focus on the ball, the children don't always interact with one another. But they do speak to Littman, who stands near the front door of the NTC's indoor facility and makes a point of looking each child in the eye and greeting him warmly as he enters the building.

"I find that's an important way to start each session — to greet the children, make them feel welcome and let them know you're here for them," Littman says. "They like routines so that's a routine we follow each week and they do notice when one of the kids is absent the others will ask about him. So even though they don't always show it, they are aware and interested in the other kids."

Queen's resident Patrick Flanagan, whose thatch of red hair makes him look a bit like a young Jim Courier, saw his first sign of tennis soaring in the stars during the U.S. Open and pleaded with his parents to play.

"We live pretty close to the U.S. Open and every year we see the blimp flying over our house when the U.S. Open is on and Patrick knows its tennis time," Tina Flanagan, Patrick's mother says. "We watch the U.S. Open every year and he would beg me to take him to play tennis. He's been watching tennis on TV for years, so finding this program has been fantastic for Patrick because he's very energetic and loves sports. His father does target practice shooting so since he was a baby he's been watching his father and I think that's helped him develop his eyes."

The youngest member of the Serving For Autism, Flanagan bounces around the court like a veteran player and shows sound eye-hand coordination. After the class concludes, the students sit inside the Grand Stand court eyes riveted on the action as NTC director of tennis Bill Mountford conducts a clinic with a group of advance junior tennis.

"I just love tennis," Patrick says, eyes unwavering from the the bouncing ball on the court. "I always watched it on TV and always wanted to play. I just like hitting the ball. It's fun."

Sports have always provided a stabilizing foundation for Patrick, who swims once a week and tosses the football around with his parents on their block.

"When we first joined the tennis program, I said Andrew, 'I feel guilty, my kid doesn't seem as autistic as some of the others.' So I felt guilty about receiving services because my son wasn't as severely autistic as other kids," Tina Flanagan recalls. "Andrew said: 'If your kid had a little bit of cancer what would you do? You would still treat it, right?' You can't just give a child meds and expect it to work — though he has a true pharmaceutical need for medication — the meds need to be an aid to help him learn. Patrick's focusing has come a long way because of the combination of the therapies, social skills training, education and programs like this one. He needs a more modified environment to learn and grow to his potential — I'm not going to set him up to fail — and the small successes give him the confidence to grow up."

These small successes give Super Saturday a new meaning as you see the enthusiasm the kids exude as they hit balls. It's a reminder that in addition to the social skills the players learn, perhaps the most valuable part of the program is the purity experience is the purity that comes from having fun on the court.

"In Andrew's case the sheer enjoyment of playing tennis is so important," Joel Hornstein says. "He's always talking about tennis and asking 'Dad, are we doing to tennis on Saturday?' On the rare occasion when we need to miss a session, he's very upset about it and asking 'When can we go back to play tennis?' It's a blessing to us that NYFAC sponsors this, that Mike commits his time and of course that the USTA donates the court. If we had to pay for something like this on an hourly basis, with all the money we spend weekly on services, there's no way we'd be able to afford a program like this ourselves. So we are all very grateful and it's a joy just seeing these kids have fun."

Baumann hopes the two Serving For Autism programs in New York will serve as models for future programs around the nation. NYFAC has written a guide book to serve as a course curriculum for instructors to follow.